Saturday, September 29, 2012

just the two of us...

This is from Nathan & Jesin's wedding! And as I look back on the wonderful day that this picture was taken, I can't help but be sad about Sara. I miss the summer with her, the fun times camping, and traveling with our family. Thanks for praying. Today was a great day, just the two of us.

Friday, September 28, 2012

Praying for Hope

As Sara continues to improve on the Berlin Heart, we are so blessed that she can be well going into a heart transplant.

Right now, I'm thinking about a family we just met who share our faith in the Lord. Please pray with me for a little girl named Hope. Her family is facing some extremely hard decisions and they need comfort & encouragement. Pray for rest for this weekend, and especially for Hope's surgery on Monday. We know God is good, and we're praying that good would come out of this situation, to glorify God. 

" Be devoted to one another in love. Honor one another above yourselves... Be joyful in hope, patient in affliction, faithful in prayer." Romans 12:10, 12

I also am not sure why the blog hasn't been working well, sometimes not showing pictures or the background. Sorry if you're having trouble viewing it.

Thursday, September 27, 2012

Monday, September 24, 2012

more of the same

Sara has been doing well with eating, although sometimes the meds make her vomit. It's mainly because the meds taste awful, and she has such a great gag reflex! Please keep praying that she'll eat well, and gain weight. We're doing well too, it's nice to have a more of a schedule to follow now. You can also pray for Hailey, that she'll enjoy our school time together, and that she'll work hard, and do her best. It's hard to be away from Sara, but it's also good motivation to finish her work when she wants to go see Sara.

We're still enjoying company, the pool, the beach, and walks in the sunshine :) Thanks for following along with us on the blog!

Friday, September 21, 2012


On the way to the pool! That's the way we get around now!

Every Monday & Friday we spend time in the pool, here's Sara sitting on Dad!

Sara loves chocolate once in a while, and it was so good!
                            Working up an appetite has been getting a little easier with her walking around so much, but it could be better, and that would help her blood thinners level out.

Playing in the Tipi outside the hospital, we went off the sidewalk to get into it and got a pine cone stuck in the IKUS wheel!

A great visit with friends who know all about a heart transplant!

Busy Builder Sara working hard at the Beach! With all the activity centers there, she pretty entertained, and fairly entertaining!
We love walks, and Sara's now walking for longer then 10 min.

Loving the sunshine!
We found a new playroom, so we'll make use of it when the Beach is closed. New toys are always fun!

Playing ring toss with Hailey!
Sara spotted my earbuds, so we listened to music for a while, fun times!

Sara's night sky
We're getting to know the hospital halls well with all the walks we take.
Sara's sure looking good, especially now that her stitches are out and she can shower.

 Camp friends have the best skits ever!
Hailey trying to explain the new story from our camp friends, the pictures are super awesome!

Love the new clothes from Auntie Dawn, thanks!

All ready for school!

It's nice to have everything organised now, we'll have to get at it now that all our school books are in!

Tuesday, September 18, 2012

All dressed up and ready to go!

Sara's been so good at getting around, and she's even wanting to get dressed in her own clothes now. She no longer has a feeding tube, so we're trying to help her eat & drink well. Some of her meds have an awful taste, but she's doing ok keeping them down now, and so far today has been the best day yet for fluid intake! Yay Sara!
It's so fun to be up and around with Sara & Hailey, that the days aren't feeling as long, we've been keeping quite busy with all the activites there are to do! Next time I'll have to post a few pictures to show you what we've been up to lately, but here's one taken by Dawn when she visited today.

Along the way there are a number of people that inspire us in our journey. Thank you for your caring words, hugs, gifts, prayers & love. Many have inspired us to be bold in sharing our faith, to pray for others and be grateful for the blessings we have. We know we have to keep hoping for the best for Sara, to live for today, to be brave, to be at peace, but also to find joy in life again after the roller coaster ride of surviving a heart transplant. We are forever learning, and continually amazed at what God has done, and now, we're waiting to see what God will do!

Sunday, September 16, 2012

The Weekend

Unlike last weekend, this weekend has been quite busy! Thanks to friends stopping by!

Sara had an IV come out and replaced with a new one yesterday, and today she had it removed! So now she only has her pik line in for blood work and meds. The only line holding her down is her air hose to the IKUS, which makes getting around so much easier! It's so good to see Sara walking around, she's having more fun being more mobile!

Please keep praying that she'll be able to eat & drink more in order to get the feeding tube out. She's come along ways, and she's recovering well. Thanks for praying for us!

Friday, September 14, 2012

Moving up!

We've moved up on the list and our to our own room! 

We are happy to have our own room, we can even decorate it with the girl's artwork! They love painting! We even spent time with a princess at the Beach! We've been walking around the room a little, even checking out what's outside! We went outside in the sunshine too, after swimming in the pool today! Joel & I are now trained on the IKUS (device that controls the settings for the Berlin Heart), and Sara now rides the IKUS whenever we travel down the halls! 

Sara is back to a status 4 the highest status on the transplant list. The reason she was bumped back up from 3.5 is because small manageable clots keep forming and they're worried about the chance of a stroke. They've already changed her pump once and they can again if they need too. Please pray for a new heart for Sara.

Seeing as we're here for all of the day, it's really nice to have people stop by! Thanks to everyone who has visited! We're doing pretty well now, getting into a routine. Sara's really looking forward to the pool tomorrow, and she still loves the beach! It's so amazing to see her getting back to what she used to be doing and playing with Hailey again, God has blessed us with with two wonderful girlies!  

We are continue to pray for others in need; Caleb, Jensen, Drayton, Morgan and our good friend Hannah.