Tuesday

The only change today after the Echo on Sara's Heart was to lower the amount the pump is pumping for her  from 80% yesterday, to 50% today. Her kidneys are not doing well, but her liver has shown some improvement. They're also trying to find a balance for her sedation, keeping her pain under control, but also not completely sedating her. They like to see some movement, but not too much! Please keep praying that God will guide the Doctor's decisions, and that it will be the best for Sara. We're so thankful for the PICU, and the staff who care for her, Sara is in good Hands! God is so Good!

Monday

Today Sara had an Echo, and then they did another Echo to see how her heart managed while they slowed down the pump and let her heart take some of the load. It went well, no change on her pressures or numbers, so that is all good, she'll stay with those settings until tomorrow. Not much new happening, other then a little less sedation, and a little movement from Sara! We'll see what they do tomorrow, maybe turn the pump down again? I'm not sure. Little improvements are good news, so we're praising the Lord for that, He is so good! I can't wait to give hugs & cuddles again, that's all I want to do when I see her!

On the transplant list, and now she's improving...

After 3 surgeries in 4 days, Sara is improving. We're on the transplant list and waiting to see how she does with her own heart. The levetronix heart pump is running at 80% now, and they're watching to see how well her heart handles that. We're praying that her kidney & liver function improves, they've been hit hard with these surgeries because of the medications and the by-pass machine. We're thankful that her bleeding has continued to improve and the surgery today to remove the clot was sucessful. Thanks for praying with us!

Waiting, and more waiting...

So after a long day of waiting, we are still waiting to see how Sara will do. She had another surgery this morning to clean out the blood clots and fluid from around the heart. A very simple procedure that went well. They are still trying to manage the bleeding but she seems to be doing better that way. We talked with the transplant team today and all the tests are done that they need to do before listing her. Our surgeon is calling them this evening to get her on the list, so we will find out if she's on the list tomorrow morning. This does not mean a transplant will for sure happen, it just means if a heart becomes available Sara has a shot at getting it. She is going back into surgery tomorrow morning to remove a blood clot from her right ventricle. That should make more room for the  left side to do it's job. There is still a chance for the fontan to work, but as we wait and see, at least she will be listed.
Here are a couple pictures before Sara went into surgery and after. Sorry if they are too graphic, but our intent is to document and update everyone on our journey. Thanks for all your prayers, we're so thankful for each one!

Maybe the transplant list?

Sara had a rough night. They struggled with controlling the bleeding, thankfully it has decreased. her kidneys aren't doing well, but she isn't in need of dialysis. She is on many medications and looking quite purple, but she looks better today then when we saw her last night. There is a blood clot on her right side (the closed off side), but it seems not to be bothering her left side, but the right side is still very large and compresses the left side so it's function isn't so good. Because she isn't coping well with the surgery, so she is on an external pump. Now they are talking about getting her on the transplant list, so they are testing her right now and we'll know more tomorrow. If she goes on the list, she will be the top priority. So that means a nation wide search for a heart. We know it comes with many issues of it's own, but because of how sick she is right now most of the doctors think it is the best option for Sara. Things still could change, so we'll update as we get chances to do so.
Thanks for your prayers and encouragement! Love the Congo's

Surgery at 11am tomorrow!

Today we're getting ready for Sara's surgery- baths, laundry, dishes, picking out what toys will come with us, and taking pictures of my girls! It will be a while before Sara's back on her feet again, and they're just too cute! Her surgery is scheduled for tomorrow at 11am, thanks for praying for us.

New surgery Date... again!

Sara won't be having her surgery tomorrow, it has been bumped because of emergency surgeries coming in. So it's scheduled for August 17th, but if there's a cancellation they'll book us in sooner. All the tests are done- the Echo, ECG & bloodwork is all set and ready. It was a long day at the Stollery. So we're glad to be home now, time for a nap! Hopefully we can keep Sara well! This is the longest she's been healthy since wintertime. Thanks for keeping us in your prayers :) 

Sara's Open Heart Surgery for August 8th

We've almost made it to the date! Sara's feeling well, and doing well this time! We're praying that she stays healthy, and that the surgery August 8th goes as planned! We'll be keeping the blog updated, and we'll be in for the pre-admission clinic on the 7th, and then find out the time of the surgery. Thanks for thinking of us & especially Sara in your prayers.

Update on Joel's hand:
His surgery & recovery went well, he's back to work now! After spending so much time together, it's really hard to have him away working. Hopefully he'll be closer to home on the next job he goes to. We are thankful for the work, God is providing!

Highlights from the summer so far...

We are so Blessed!

Sara's Surgery Postponed

Sara will get a new surgery date when she is well again. We just can't risk going ahead with it with a sick little girl. So we'll post the new date when the surgery is rescheduled. Please pray that she is well soon! Thanks again!